LIVING down the street from a clinical trial

An Ohio Sanfilippo family found a clinical trial for their son Oliver that just so happened to be a few miles from their home.  Other families aren't so lucky to have this convenience. Oliver's mom Jennifer explains. 

Lots of rare disease families face a rough road getting their kids into a clinical trial that could save or improve their lives, and getting accepted into the trial is only the beginning of the challenges. Many families need to travel far distances - and separate from other family members for extended lengths of time - to ensure that their child can be treated (generally these trials occur at a single location).
Jennifer's son Oliver was relatively lucky, because they only live a few miles from the site of Oliver's clinical trial (for Sanfilippo type B) in Ohio.  Jennifer talks about that experience with us here. 

​It's a significant burden for a lot of families."

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