breaking the sanfilippo diagnosis to the siblings

Pennsylvania Sanfilippo mom Jamie's mother-in-law had recently passed away from a rare fatal brain disease, and her kids were therefore well aware of the devastation caused by severe dementia conditions.  So when it came time for Jamie and her husband Cory to share the devastating news of Trenton's Sanfilippo (type B) diagnosis with the two younger boys, she explained to them "What we just went through with your grandmother, is likely what we're going to go through again - only this time with Trenton". Hear it in Jamie's own words in the clip below, from a Sanfilippo Roundtable interview we conducted back in early 2023. 

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​​Be completely honest, let them ask a lot of questions, and allow them to lead the discussion"