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more than once, this washington mom leaned on the sanfilippo community (through social media chat groups) for critical advice while her son fought for his life in the hospital

6/30/2024

8 Comments

 
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“The Sanfilippo community on social media actually diagnosed (son) Ryder with a stomach infection before the doctors did” - Washington (WA) Sanfilippo mom Taci Lynn, on turning straight to her "Sanfilippo family" for advice and minute-by-minute guidance when she showed up to the hospital emergency room with her son Ryder.  
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8 Comments
Tracy Panigel link
12/19/2025 07:01:00 pm

The system is broken when a hands on mother and full time caregiver doesn’t get to chose what care she needs for her own child. Shame on you Washington

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Candace
12/21/2025 02:04:53 pm

This story is truly heart wrenching to think the people that are supposed to protect you instead they are giving a man a medical complex child who damn well know needs his mother. Now the child is in the hospital. We need to reunited this child with his mother the primary caregiver.

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Danielle
12/21/2025 09:43:44 pm

The saddest part is, is that he passed today. She just posted a little bit ago 😢😢

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Hope
12/22/2025 12:45:34 am

Yes I was so mad that they kept him from her during the this tine she won't ever find closer we just need to stand by her and show her she still needs to keep going.

Hope Greenhaw
12/22/2025 12:44:05 am

Love you sis sorry your going through this

Reply
Ashley Lusk
12/22/2025 03:04:13 am

It is very wrong what they've done to this mother and she should really file a lawsuit against them for this. I know it wouldn't solve the problem all around but it would at least help ease the pain. I can't believe Washington done this to this lady and young child. We live in such an evil and corrupt world and I pray God will be by her side and help her to get through this. She has most definitely been a very strong woman to do what she has done and still continues to do. May God bless you and keep those angels by your side Ms. Traci Lynn. You are in my thoughts and prayers.

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Erica
12/22/2025 08:08:03 am

CPS continues to fail children and families in every single state. What a tragic story this is. Shame on the people who contributed to this boy's passing!

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April Dawn
12/22/2025 10:07:37 am

I'm appalled by the government and the "father." I hope she takes them for everything she can. I hope this eats the "father" alive for the rest of his life.
Thinking and praying for you Taci.

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    • Pay it Forward: The Latest
  • About the Sanfilippo Project
  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues