Her native country Ukraine was invaded by Russia in early 2022. later that year, she found out that her son has Sanfilippo Syndrome.

Julia Berzoy lives in Florida and is the mom to son Lucas, who was diagnosed with Sanfilippo Sydrome (type C) very recently, in late 2022 – a distressful year for her and her family, to say the least, given that a lot of her family members still live in Ukraine.  She recently participated in a Sanfilippo Roundtable chat with other Sanfilippo parents, where she shared her story about her son's path to a diagnosis and navigating life following this devastating news.

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