Washington state mom Taci discovered a spicy and fun way to leverage TikTok as a powerful platform for teaching her followers about her son's disease, Sanfilippo Syndrome (type B). "I started with the Dirty Sign Language videos because people were intrigued by the 'F*** MPS' tattoo on my finger!" - Sanfilippo mom Taci Lynn Belisle (from Washington state), on stumbling upon TikTok as a platform to advocate for son Ryder. Taci now has 1 million followers on the platform and has helped bring awareness to so many people around the world about Ryder's condition. Click here to follow Taci on TikTok: https://www.tiktok.com/@taci.lynn Click below to see Taci talking about how she started doing TikTok videos to raise awareness for Sanfilippo Syndrome and her son Ryder. I started with the Dirty Sign Language videos because people were intrigued by the 'F*** MPS' tattoo on my finger"
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Mike Dobbyn, Archives
June 2024
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