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F*** YOU SANFilippo!!

11/7/2023

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Washington state mom Taci discovered a spicy and fun way to leverage TikTok as a powerful platform for teaching her followers about her son's disease, Sanfilippo Syndrome (type B).
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"I started with the Dirty Sign Language videos because people were intrigued by the 'F*** MPS' tattoo on my finger!" - Sanfilippo mom Taci Lynn Belisle (from Washington state), on stumbling upon TikTok as a platform to advocate for son Ryder.  Taci now has 1 million followers on the platform and has helped bring awareness to so many people around the world about Ryder's condition.

Click here to follow Taci on TikTok:
https://www.tiktok.com/@taci.lynn


Click below to see Taci talking about how she started doing TikTok videos to raise awareness for Sanfilippo Syndrome and her son Ryder.
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I started with the Dirty Sign Language videos because people were intrigued by the 'F*** MPS' tattoo on my finger"
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    Mike Dobbyn,
    Sanfilippo dad

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  • Home
    • VIDEO LIBRARY
  • Learn
    • Learn: The Latest
  • Share
    • Share: The Latest
  • Pay it Forward
    • Pay it Forward: The Latest
  • About the Sanfilippo Project
  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues