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    • Share: The Latest
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  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues
Rare Dads Roundtables
Every father experiencing a child's rare disease diagnosis becomes an expert in that journey. The important thing to realize is that each one of us is not on that journey alone. The #RareDads Roundtables are conversations with each other—the good as well as the bad—to help and guide us through all stages of our children's lives.
Fathers of kids with special needs discuss scary things and topics where it's usually pretty hard to open up
#LEARN  •  #SHARE  •  #PAYITFORWARD

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INTRO TO THE ROUNDTABLES
How it all began: My journey as a Rare Disease Dad
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#RAREDADS ROUNDTABLES
Episode Coming Soon!
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#RAREDADS ROUNDTABLES
Episode Coming Soon!
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#RAREDADS ROUNDTABLES
Episode Coming Soon!
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​PARTNERS
  • Home
    • VIDEO LIBRARY
  • Learn
    • Learn: The Latest
  • Share
    • Share: The Latest
  • Pay it Forward
    • Pay it Forward: The Latest
  • About the Sanfilippo Project
  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues