SHARING HER SON'S STORY TO HELP OTHERS ALONG THEIR RARE DISEASE JOURNEYS

Stacey Montgomery is the mother of Lucas (Sanfilippo Syndrome, type B), who passed away in 2018 just prior to his 21st birthday.  She lives in Cedar Rapids, Iowa, and is a board member with the National MPS Society.  Stacey and her family continue to share Lucas's story with others in the hopes of raising further awareness about the disease, as well as passing along her knowledge and experiences to other parents who now walk along a similar journey.  Stacey is an inspiration and source of light to many in the Sanfilippo- and rare disease communities.  

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His story, and all of our stories… There’s a reason"

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To view the full conversation (April 2022), click here:​