"It's a family that nobody CHOOSES to be part of, BUT IT'S ONE YOU'RE GLAD TO HAVE IN YOUR CORNER"

Delaware dad Carl's two oldest sons were born with Sanfilippo Syndrome, aka Childhood Alzheimer's. In this clip, Carl reflects upon his own journey as a Sanfilippo father and the importance of connecting with other families in similar shoes. "It's a family that nobody chooses to be part of, but once you meet other folks going through exactly what you're going through, it's a family that you're glad to have in your corner", he says.

It's a family that nobody chooses to be part of, but once you meet other folks going through exactly what you're going through, it's a family that you're glad to have in your corner"