THE $40 MILLION ABEONA windfall

Team Sanfilippo Foundation (TSF) founder and CEO Kathy Buckley talks about the Abeona investment collaboration (across multiple foundations) that ultimately raised nearly $40 million for Sanfilippo research and clinical trials.

Kathy Buckley is the founder and CEO of Team Sanfilippo Foundation, and she was kind enough to join us for a conversation back in May 2023.  Kathy has used a combination of grit, tenacity, relentlessness and smarts to make a huge impact in the fight against Sanfilippo Syndrome.  Her son Matthew has Sanfilippo Syndrome, and he's doing quite well, and now in his early 20's.  One of the more fascinating parts of our conversation was her discussion about the Abeona investment back in 2013.  Abeona Therapeutics was formed in early 2013 to help focus the search for a cure for Sanfilippo Syndrome by providing a unifying voice between and across patient advocate groups, researchers, clinicians and investors.  Kathy was one of the early leaders who rallied the various organizations to pitch into the cause.  While the trials didn't come to fruition as hoped for, the Abeona investment did raise nearly $40M for the Sanfilippo research community at large, and has helped to fuel the ongoing fight against this relentless disease. Kathy calls this her proudest accomplishment so far in the fight against Sanfilippo. 

To learn more about the Team Sanfilippo Foundation, click here: https://teamsanfilippo.org/.

See below for the 3-minute clip where Kathy talks about how the Abeona investment came about.

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To view the full interview with Kathy, click the link below: