Welcome to the Sanfilippo Project
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    • Share: The Latest
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    • Pay it Forward: The Latest
  • About the Sanfilippo Project
  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues
Who Are We?
We are family.
And our stories need to be heard.

About the Sanfilippo Project


The Sanfilippo Project is a platform for ALL of us to share our stories, connect with others in our shoes, and empower one another to be the best parents, advocates and caregivers that we can be.  And we want to hear from YOU, because your story is important too.
Write to us, tell us YOUR story, let us know what YOU want to learn about.  We are in this TOGETHER, and our stories matter.  Let's learn from one another...   

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© 2024 Sanfilippo Project
ABOUT
​PARTNERS
  • Home
    • VIDEO LIBRARY
  • Learn
    • Learn: The Latest
  • Share
    • Share: The Latest
  • Pay it Forward
    • Pay it Forward: The Latest
  • About the Sanfilippo Project
  • Intro to the Roundtables
  • Navigating coming policy changes
  • Mean words hurt
  • Rare Disease Research Initiatives - Understanding the issues